Nicholas - the Future Heartbreaker
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Congenital Heart Defects Are The #1 Birth Defect

Nicholas Mathews - Partial Canal Defect

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1 in 125 - The number of children born with a Congenital Heart Defect

There are over 35 different Congenital Heart Defects

The most common congenital heart defects are:
 
Atrial Septal Defect or Ventricular Septal Defect - an abnormal opening in a wall separating the parts of the heart
 
Coarctation of the aorta, pulmonary stenosis, or aortic stenosis - Narrowing of a blood vessel or a heart valve in or near the heart
 
Transposition of the Great Vessels, Tetrology of Fallot, Total Anomalous Pulmonary Venous Return, or Truncus Arteriosus - Abnormal positioning of the major blood vessels that connect to the baby's heart
 
Tricuspid Valve Abnormalities - Problems with the heart valves
 
Patent Ductus Arteriosus - Blood vessels that remain open after birth
 
Hypoplastic Left Heart Syndrome - Underdevelopment of the left side of the heart

Although nearly twice as many children die each year from congenital heart disease compared with childhood cancers, funding for pediatric cancer research is 5 times higher than for congenital heart disease.

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CHD Family Tree - Click Above for Special Heart Graphics

If you would like to have a site or link added to this CHD Family Tree, please contact me.  Surgery and procedures to correct CHD are changing rapidly.  Therefore, information on CHD sites can become outdated.  The information here is not intended to be a substitute for your doctor.  I try to check the sites here but as you see, there are quite a number of them.  If you find a link that is broken, please let me know. cherir1@peoplepc.com Thank you.

Anatomy, Defects, Conditions - Johns Hopkins

Pediatric Heart Conditions - Your Total Health on iVillage

Descriptions of Congenital Heart Defects

Cove Point Foundation - Congenital Heart Disease

CHD Online Handbook

CHD Now - Families Raising Awareness

Children's Cardiomyopathy

Children Heart Institute

Congenital Heart Defect Awareness, Inc.

Congenital Heart Defects.com

Links to Sites about Feeding Issues

Heart and Coeur

Heart Center Encyclopedia

Heart Health - Your Total Health on iVillage

Hearts of Hope - Australian HLHS site

Parent's HLHS Page

Kids With Heart

Little Hearts

The American Heart Association

PediHeart

The Congenital Heart Information Network

Canadian Congenital Heart Alliance

Congenital Heart Program - Albany Medical Center

Heart Defects - Royal Children's Hospital, Melbourne

Pediatric Heart Surgery - Miami Children's Hospital

Nemours Cardiac Center

Texas Children's Hospital

Cardiovascular Genetics Clinic - Texas Children's Hospital

Texas Heart Institute

Yale University School of Medicine

Rush Children's Hospital

Valve Replacement.com

Zachary Brooks CHD Endowment

Legacy of Life Endowment

Saving Little Hearts

Partners of the Heart - PBS Program on the B-T Shunt

Something the Lord Made - HBO Film on the B-T Shunt, Dr. Alfred Blalock, and Vivien Thomas

Ask NOAH about Congenital Heart Defects

Organ Donation

Books

My Heart vs. the Real World - Children With Heart Disease in Photographs & Interviews

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Kids With Heart - Find books like Matty's Heart in their bookstore

Find Books at "It's My Heart" CHD Support Group

Find Books On CHD at congenitalheartdefects.com

Specific defects and repairs -

Atrial Septal Defects

AV Canal Defect

Canal Defect

Ostium Primum Septal Defect/Partial Canal Defect - Article written by Nick's doctor

Partial Canal Defect

Partial Canal Defect - University of Virginia Children's Hospital

Coarctation of the Aorta - Mayo Clinic

Coarctation of the Aorta - Miami Children's Hospital

Coarctation of the Aorta - University of Michigan

CHD Corrective Surgery Site -

Congestive Heart Patients

Hypoplastic Left Heart Syndrome

Parent's HLHS Page

The Fontan Operation

The Norwood Procedure

Information on The Glenn from Yale

Fenestrated Fontan

Anna's Fontan Story

Kawasaki Disease

Konno Procedure

Louis J. Acompora Memorial Foundation - AED Program for Sudden Death in Young Athletes

Marfan Syndrome

Marfan's - What is it?

Rastelli Procedure

The Robie Foundation - Heart Screening for School Children

Ross Procedure - USC

My Ross Procedure - A Photographic Diary

Links to Ross sites - Evan's Personal Site

Tetrology of Fallot

Truncus Illustration

Support -

Heart Defects Message Board on I-Village

Adults with CHDs -

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Australian (QLD) CHD Site

Heart Support Groups in Australia - Victoria

California Heart Connection

CHD Families - Kansas City Support Group

CHD Families - Yahoo Support Group

The Children's Heart Society - Stollery Children's Health Cardiology Programs

Club of Hearts

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Ebstein's Anomaly Support Group

CHD - Fathers

Heart of Our Hearts - Support Group for Grandparents

Heart to Heart in Texas

Help For Little Hearts - Southern Wisconsin Heart Group

Heterotaxy, Ivemarks Syndrome, Asplenia Support Group on Yahoo Health

Hope For HLHS

Hearts of Hope - Michigan Support Group

Hearts of Hope United

Hearts With CHD

HRHS Support Group

It's My Heart Support Group - Houston

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LQTS Support Group

l- L-TGA Support Group on Yahoo

Mended Little Hearts

Midwest Heart Connection

MSN Heart Defects Support Message Board

Parents For Heart - Minneapolis, MN

CHD Babies of Ohio Support Group

Sacramento Support Group

San Antonio Support Group

Our Sweet Hearts - SVT Support Site

TAPVR Support Group on Yahoo

2 Hearts - a transplant support site

Tetralogy of Fallot MSN Support Site

Tetrology of Fallot Support Group on Yahoo

Triangle Mended Little Hearts - North Carolina

Truncus Arteriosus Support Group

TruncusArteriosus.com

VSD Support Group on Yahoo

Wolff-Parkinson-White Support Group

Preparing For Surgery

CarePages - Keep your family and friends informed.

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Caring Bridge - Free websites to connect and support loved ones.

Children's Hospital of Los Angeles

Children's Hospital of Boston

Cornell University

Texas Children's Hospital - Before, Day of, Aftercare

Children's Hospital of Winnipeg

Hearts of Hope

Pediheart

Places to stay during hospitalizations - Please check with your specific hospital.

Locate a Ronald McDonald House

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The Devon Nicole House at Children's Hospital Boston - A place for heart families

Organizations That Help Provide Needed Surgery -

The Deborah Foundation

The Gabriel Project

Gift of Life

Little Hearts On The Mend

Organizations helping with air transportation

Helpful Products -

Helpful handouts and forms from California Heart Connection

Orange-Sol Medical Products - Safe Adhesive Removers For Skin

Medic Alert Bracelets

Share A Bear - CHD Awareness

Warm Belly Swim Suits

Camps -

Camp Bon Coeur, Inc., Louisiana

Camp Braveheart - Georgia

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Camp Del Corazon, California

Camp Hope With Heart - New Jersey

Camp Holiday Trails - Charlottesville, Virginia

Camp Meridian - New Hampshire

Camp Kaleidoscope - North Carolina

Victory Junction - North Caroline

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Camp Pump It Up & Camp YOLO - Texas Children's Hospital

Camp Moss in Texas

Camp Odayin - Minnesota

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Camp Taylor - California

Champions Kids' Camp

Camp Systole, Kansas City, Missouri

Heart Camp - Pennsylvania

Camp Victory - Millville, Pennsylvania

Madden Open Hearts Camp, Massachusetts

Children's Hospital Heart Camp - Ohio  (614) 722-2530

Champ Camp - Oklahoma   Contact DSLammert@SaintFrancis.com

Brave Hearts - Nebraska Contact jstrawn@chsomaha.org

In 2002, Nicholas received a wish trip to Disneyworld from Kid's Wish.  His family stayed at the Give Kids the World Resort.  Please click on these sites to see how your child may qualify for a wish grant or to learn how you can support these groups.  You can also learn about how the products you buy help fund places such as Give Kids the World.

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Click above to go to Kid's Wish

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Click above to go to Give Kids the World

Helpful Heart Sites -

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This site is a continuous work in progress.  Please feel free to e-mail with suggestions for improvement or to add a site.  Thank you, Cheri cherir1@peoplepc.com