1 in 125 - The number of children born with a Congenital Heart Defect
There are over 35 different Congenital Heart Defects
The most common congenital heart defects are:
Atrial Septal Defect or Ventricular Septal Defect - an abnormal opening in a wall separating
the parts of the heart
Coarctation of the aorta, pulmonary stenosis, or aortic stenosis - Narrowing of a blood vessel
or a heart valve in or near the heart
Transposition of the Great Vessels, Tetrology of Fallot, Total Anomalous Pulmonary Venous
Return, or Truncus Arteriosus - Abnormal positioning of the major blood vessels that connect to the baby's heart
Tricuspid Valve Abnormalities - Problems with the heart valves
Patent Ductus Arteriosus - Blood vessels that remain open after birth
Hypoplastic Left Heart Syndrome - Underdevelopment of the left side of the heart
Although nearly twice as many children die each year from congenital heart disease compared
with childhood cancers, funding for pediatric cancer research is 5 times higher than for congenital heart disease.

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CHD Family Tree - Click Above for Special Heart Graphics |
If you would like to have a site or link added to
this CHD Family Tree, please contact me. Surgery and procedures to correct CHD are changing rapidly. Therefore,
information on CHD sites can become outdated. The information here is not intended to be a substitute for your
doctor. I try to check the sites here but as you see, there are quite a number of them. If you find a link that
is broken, please let me know. cherir1@peoplepc.com Thank you.
Anatomy, Defects, Conditions - Johns Hopkins
Pediatric Heart Conditions - Your Total Health on iVillage
Descriptions of Congenital Heart Defects
Cove Point Foundation - Congenital Heart Disease
CHD Online Handbook
CHD Now - Families Raising Awareness
Children's Cardiomyopathy
Children Heart Institute
Congenital Heart Defect Awareness, Inc.
Congenital Heart Defects.com
Links to Sites about Feeding Issues
Heart and Coeur
Heart Center Encyclopedia
Heart Health - Your Total Health on iVillage
Hearts of Hope - Australian HLHS site
Parent's HLHS Page
Kids With Heart
Little Hearts
The American Heart Association
PediHeart
The Congenital Heart Information Network
Canadian Congenital Heart Alliance
Congenital Heart Program - Albany Medical Center
Heart Defects - Royal Children's Hospital, Melbourne
Pediatric Heart Surgery - Miami Children's Hospital
Nemours Cardiac Center
Texas Children's Hospital
Cardiovascular Genetics Clinic - Texas Children's Hospital
Texas Heart Institute
Yale University School of Medicine
Rush Children's Hospital
Valve Replacement.com
Zachary Brooks CHD Endowment
Legacy of Life Endowment
Saving Little Hearts
Partners of the Heart - PBS Program on the B-T Shunt
Something the Lord Made - HBO Film on the B-T Shunt, Dr. Alfred Blalock, and Vivien Thomas
Ask NOAH about Congenital Heart Defects
Organ Donation
Books
My Heart vs. the Real World - Children With Heart Disease in Photographs & Interviews

Kids With Heart - Find books like Matty's Heart in their bookstore
Find Books at "It's My Heart" CHD Support Group
Find Books On CHD at congenitalheartdefects.com
Specific defects and repairs -
Atrial Septal Defects
AV Canal Defect
Canal Defect
Ostium Primum Septal Defect/Partial Canal Defect - Article written by Nick's doctor
Partial Canal Defect
Partial Canal Defect - University of Virginia Children's Hospital
Coarctation of the Aorta - Mayo Clinic
Coarctation of the Aorta - Miami Children's Hospital
Coarctation of the Aorta - University of Michigan
CHD Corrective Surgery Site -
Congestive Heart Patients
Hypoplastic Left Heart Syndrome
Parent's HLHS Page
The Fontan Operation
The Norwood Procedure
Information on The Glenn from Yale
Fenestrated Fontan
Anna's Fontan Story
Kawasaki Disease
Konno Procedure
Louis J. Acompora Memorial Foundation - AED Program for Sudden Death in Young Athletes
Marfan Syndrome
Marfan's - What is it?
Rastelli Procedure
The Robie Foundation - Heart Screening for School Children
Ross Procedure - USC
My Ross Procedure - A Photographic Diary
Links to Ross sites - Evan's Personal Site
Tetrology of Fallot
Truncus Illustration
Support -
Heart Defects Message Board on I-Village
Adults with CHDs -

Australian (QLD) CHD Site
Heart Support Groups in Australia - Victoria
California Heart Connection
CHD Families - Kansas City Support Group
CHD Families - Yahoo Support Group
The Children's Heart Society - Stollery Children's Health Cardiology Programs
Club of Hearts

Ebstein's Anomaly Support Group
CHD - Fathers
Heart of Our Hearts - Support Group for Grandparents
Heart to Heart in Texas
Help For Little Hearts - Southern Wisconsin Heart Group
Heterotaxy, Ivemarks Syndrome, Asplenia Support Group on Yahoo Health
Hope For HLHS
Hearts of Hope - Michigan Support Group
Hearts of Hope United
Hearts With CHD
HRHS Support Group
It's My Heart Support Group - Houston

LQTS Support Group
l- L-TGA Support Group on Yahoo
Mended Little Hearts
Midwest Heart Connection
MSN Heart Defects Support Message Board
Parents For Heart - Minneapolis, MN
CHD Babies of Ohio Support Group
Sacramento Support Group
San Antonio Support Group
Our Sweet Hearts - SVT Support Site
TAPVR Support Group on Yahoo
2 Hearts - a transplant support site
Tetralogy of Fallot MSN Support Site
Tetrology of Fallot Support Group on Yahoo
Triangle Mended Little Hearts - North Carolina
Truncus Arteriosus Support Group
TruncusArteriosus.com
VSD Support Group on Yahoo
Wolff-Parkinson-White Support Group
Preparing For Surgery
CarePages - Keep your family and friends informed.

Caring Bridge - Free websites to connect and support loved ones.
Children's Hospital of Los Angeles
Children's Hospital of Boston
Cornell University
Texas Children's Hospital - Before, Day of, Aftercare
Children's Hospital of Winnipeg
Hearts of Hope
Pediheart
Places to stay during hospitalizations - Please check with your specific hospital.
Locate a Ronald McDonald House

The Devon Nicole House at Children's Hospital Boston - A place for heart families
Organizations That Help Provide Needed Surgery -
The Deborah Foundation
The Gabriel Project
Gift of Life
Little Hearts On The Mend
Organizations helping with air transportation
Helpful Products -
Helpful handouts and forms from California Heart Connection
Orange-Sol Medical Products - Safe Adhesive Removers For Skin
Medic Alert Bracelets
Share A Bear - CHD Awareness
Warm Belly Swim Suits
Camps -
Camp Bon Coeur, Inc., Louisiana
Camp Braveheart - Georgia

Camp Del Corazon, California
Camp Hope With Heart - New Jersey
Camp Holiday Trails - Charlottesville, Virginia
Camp Meridian - New Hampshire
Camp Kaleidoscope - North Carolina
Victory Junction - North Caroline

Camp Pump It Up & Camp YOLO - Texas Children's Hospital
Camp Moss in Texas
Camp Odayin - Minnesota

Camp Taylor - California
Champions Kids' Camp
Camp Systole, Kansas City, Missouri
Heart Camp - Pennsylvania
Camp Victory - Millville, Pennsylvania
Madden Open Hearts Camp, Massachusetts
Children's Hospital Heart Camp - Ohio (614) 722-2530
In 2002, Nicholas received a wish trip to Disneyworld from Kid's Wish. His family stayed
at the Give Kids the World Resort. Please click on these sites to see how your child may qualify for a wish grant or
to learn how you can support these groups. You can also learn about how the products you buy help fund places such as
Give Kids the World.

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Click above to go to Kid's Wish |

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Click above to go to Give Kids the World |
Helpful Heart Sites -









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